In case you haven't noticed, MS is very painful. And if you haven't noticed, either don't have MS or don't spend enough time with me. It's hard to believe that up until the 1980's, it was considered a painless condition. I have been struggling to figure how or why anyone could make that claim, as pain - in many MANY different forms - has been one of the worst symptoms of my MS.
We all have our good days and our bad days. For me, good days are the ones where I don't have a symptom that was bad enough to be memorable a week later, as opposed to those yucky ones that I have just learned to live with. All I can say is that some of my pain symptoms have seared themselves into my memory so well that I can remember them months, even years later, including specific circumstances of what I was doing and where I was when I felt that degree of pain.
It's that "hard-to-catch-my-breath" pain - deep, dull aches in my legs and back where my clothes touching me feel like stinging insects; and "screaming-out-loud" (literally) pain from the nerve damage in my face from the Trigeminal Neuralgia.
Because of MS, I have fallen, run into doors, bumped into tables, cut myself badly, spilled hot drinks on me, slipped in the shower... However most people say it's because I'm klutzy. I guess it would be a stretch to include the pain from the confinement in MRI tubes or side-effects from my medications, but all those things hurt, too.
MS is painful.
Love you sister.
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